ALS Resources

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ALS is a disease that changes the lives of patients and their family members. Families confronted with a diagnosis of ALS may experience anxiety, confusion, and stress.

The following advocate organizations and social service agencies can suggest ways to cope with the physical and emotional challenges of ALS and provide information, assistance, and emotional support to patients, families, and caregivers. Travel information for people with ALS is also included, as well as a reading list that patients and their caregivers may find useful.

Click on the following links for more information:

Patient Resources

Caregiver/Family Resources

Home Care and Hospice Options

Travel Assistance

Recommended Reading

ALS Center Finder

Useful links

The ALS Therapy Development Institute
A nonprofit, biotech company researching treatment for ALS patients.
www.als.net

The Muscular Dystrophy Association is a health agency that works with the ALS Association to bring scientists and the public together.
www.mda.org

For the ALS portion of the MDA website, go to: www.als-mda.org

The Eleanor and Lou Gehrig MDA/ALS Center at The Columbia-Presbyterian Medical Center Neurological Institute of New York—one of the country’s biggest centers for ALS care.
www.columbiaals.org

The Robert Packard Center for ALS Research at The Johns Hopkins School of Medicine researches new therapies to slow or cure ALS.
www.alscenter.org

Rilutek is indicated for the treatment of patients with ALS*

* amyotrophic lateral sclerosis

Important Safety Information

  • You should not take Rilutek if you are allergic to any of its ingredients.

  • Call your doctor if you have a fever, cough, or difficulty in breathing while taking Rilutek.

  • Rilutek may cause you to feel dizzy, light-headed, or sleepy. If you experience any of these, you should NOT drive a vehicle or use machinery.

  • If you miss or skip a dose of Rilutek, do not take any extra tablets to make up for those you missed, but take your prescribed dose at the next regularly scheduled time.

  • When taking Rilutek, avoid drinking excessive amounts of alcohol; alcohol may contribute to compromising liver function and may be associated with an increased risk of liver problems.

  • The most common side effects of Rilutek are weakness, nausea, lung function decrease*, a mild liver disorder that is typically temporary, runny nose and headache. If any side effects become troublesome, contact your doctor.

  • Be sure to tell your doctor and pharmacist about all other medicines you are taking, including nonprescription products and vitamins. If you have questions, please talk to your doctor.

Please refer to the full prescribing information using the link at the top of the page.

*Not associated with a reduction in vital capacity

The health information contained herein is provided for general educational purposes only. Your healthcare professional is the single best source of information regarding your health.
Please consult your healthcare professional if you have any questions about your health or treatment.


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