IMPORTANT SAFETY INFORMATION
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Treatment support
RILUTEK is the only medicine approved by the Food and Drug Administration (FDA)
for ALS. There may be benefits to starting RILUTEK treatment as soon as possible.
While it is not a cure, RILUTEK has been shown to significantly extend the time
before
invasive breathing assistance is needed and/or survival time (an average
of 2 to 3 months longer than people that took a
placebo). After 18 months of treatment, there was no difference between
those who took RILUTEK and those who took a placebo. What this means is that, in
clinical trials, RILUTEK offered a survival benefit early in ALS treatment.
Click
here to download and print helpful information on RILUTEK
Physician support
The information you provide to your doctor is very important. It will help him or
her get a better picture of your condition. And it’s helpful to have all your information
in one place. Click on the link below to access a Doctor Discussion Guide that you
can fill in and take with you to your appointment.
Click
here to download and print a Doctor Discussion Guide
Communication and mobility support
Many practical tools are available to help patients with ALS function on a daily
basis. Communication aids and assistive devices can help you:
- Function as independently as possible
- Maintain communication
- Overcome fatigue
Click here to find resources
on communication aids and assistive devices that can help you
ALS center support
An ALS center provides medical care and therapy for patients with ALS. There are
ALS centers all over the country. Each one is staffed by healthcare professionals
dedicated to treating people with ALS and supporting their caregivers.
ALS centers offer different healthcare disciplines from a team of people who are
specially trained to meet the needs of ALS patients and their caregivers. Services
at ALS centers can include physical therapy, occupational therapy, respiratory therapy,
nursing, registered dietician services, psychology or psychiatry, as well as speech
and language pathology. Most ALS centers offer a full range of these types of services,
some offer a few. So it is best to check with individual ALS centers to find out
what is offered.