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These national organizations are dedicated to fundraising and researching possible
medications and cures for ALS and related disorders.
The ALS Association is a nonprofit, voluntary health agency in search of
a cure for ALS. Through research, patient and community services, public education,
and advocacy, ALSA provides help and hope to those facing the disease.
ALS Association
27001 Agoura Road, Suite 250
Calabasas Hills, CA 91301-5104
Phone: (818) 880-9007
www.alsa.org
Project ALS strives to bring effective treatments to patients with ALS
and ultimately find a cure. Most funds raised go toward supporting research in the
areas of genetics, drug discovery, stem cells, and disease pathways.
ALS Association/Project ALS
900 Broadway, Suite 901
New York, NY 10003
Phone: (800) 603-0270
www.projectals.org
The Muscular Dystrophy Association is a voluntary health agency bringing
scientists and the public together to fight neuromuscular diseases through research,
medical and community services, and health education. The ALS portion of the MDA
website provides links to valuable information and services such as MDA clinics,
ALS research and clinical centers, support groups, equipment funding, loan program
and repairs/modifications, summer camp program, MDA chat groups, and MDA services
for individuals and families.
Muscular Dystrophy Association
3300 E. Sunrise Drive
Tucson, AZ 85718
Phone: (800) 344-4863
www.mda.org
For the ALS portion of the MDA website, visit
www.als-mda.org
NORD is a group of voluntary health organizations serving patients with
rare diseases and their families through education, advocacy, research, and service
programs. Their purpose is to commit to the identification, treatment, and cure
of rare diseases.
National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
P.O. Box 1968
Danbury, CT 06813-1968
Phone: (203) 744-0100
(800) 999-6673 (voicemail only)
TDD: (203) 797-9590
www.rarediseases.org
The National Institute of Neurological Disorders and Stroke (NINDS) researches
disorders of the brain and nervous system. It is one of several research institutes
and centers that make up the National Institutes of Health (NIH). The NIH, located
in Bethesda, Maryland, is an agency of the Public Health Service within the US Department
of Health and Human Services.
NIH Neurological Institute
P.O. Box 5801
Bethesda, MD 20824
Phone: (800) 352-9424
www.ninds.nih.gov
The Eleanor and Lou Gehrig MDA/ALS Center at The Columbia-Presbyterian Medical Center,
Neurological Institute of New York is one of the country’s biggest centers
for ALS comprehensive care. The center provides patient care, researches the cause
and cure for ALS and other motor neuron diseases, educates healthcare professionals,
and reaches out to their patients’ communities. They join forces with government
agencies and nonprofit agencies (NIH, MDA, and ALSA) in caring for people with ALS
and finding a cure.
Eleanor and Lou Gehrig MDA/ALS Center
The Neurologic Institute
710 West 168th Street, 9th floor
New York, NY 10032-2699
Phone: (212) 305-1319
www.columbiaals.org
The Robert Packard Center for ALS Research at The Johns Hopkins School of Medicine
researches new therapies to slow or cure ALS.
Robert Packard Center for ALS Research at Johns Hopkins
5801 Smith Avenue, McAuley Suite 110
Baltimore, MD 21209
Phone: (410) 614-5972
www.alscenter.org
The University of Miami ALS Clinical and Research Center provides care
and multifaceted support for patients with ALS and supports the families from diagnosis
to the end stages of the disease. They also conduct advanced research into the cause
and cure of ALS. This website also contains contact information for ALS Certified
Clinical Care Centers across the country.
University of Miami Kessenich MDA ALS Center
1150 NW 14th Street, Suite 701
Miami, FL 33136
Patients Only: (800) 690-ALS1 (2571)
Local Calls: (305) 243-7400
www.miami-als.org
The ALS Therapy Development Foundation is a nonprofit biotech company researching
treatment for ALS patients.
ALS Therapy Development Institute
215 First Street
Cambridge, MA 02142
Phone: (617) 441-7200
www.als.net