Books
The following titles are recommended reading for ALS patients, their family members,
and caregivers. Books to help plan a trip for travelers with disabilities are also
included.
- I Choose to Live: A Journey Through Life with ALS
William Sinton Burnbury Publishing, Gurney, IL 2002
- I Remember Running: The Year I Got Everything I Ever Wanted
- and ALS
Darcy Wakefield Marlowe & Company, Washington, DC 2006
- If They Could Only Hear Me: A collection of personal stories
about ALS and the families that have been affected
Ed Rice (editor) BookSurge Publishing, Charleston, SC 2005
- Tales from the Bed: A Memoir
Jenifer Estess, Valerie Estess Washington Square Press, reprint edition 2005
- Amyotrophic Lateral Sclerosis: A Comprehensive Guide to Management
Mitsumoto H and Norris F, eds. Demos Publications 386 Park Avenue South, Suite 201
New York, NY 10016
Phone: (212) 683-0072 or (800) 532-8663
Travel Books
- Fodor's Great American Vacations for Travelers with Disabilities
Fodors Travels Publications
- How to Travel: A Guidebook for Persons with a Disability
Fred Rosen Science and Humanities Press
- Wheelchair Around the World
Patrick D. Simpson Pentand Press
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Important Treatment Considerations
- Evaluate serum ALT levels every month during the first 3 months
of treatment, and every 3 months during the remainder of the first year. Thereafter,
serum ALT levels should be periodically evaluated more frequently in patients who
develop elevations. Rilutek should be discontinued if ALT levels increase to 5 times
ULN or if clinical jaundice develops.
- Advise patients about the potential for dizziness, vertigo, or
somnolence and not to drive or operate machinery until they have sufficient experience
on Rilutek.
- Advise patients to report any febrile illness; measure WBCs.
- Use Rilutek with caution in patients with concomitant liver insufficiency;
caution should be exercised when prescribing Rilutek to patients taking drugs that
are potentially hepatotoxic or highly protein bound:
- Interactions may also occur when riluzole is given concurrently
with agents that affect hepatic CYP 1A2 activity.*
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