National organizations

ALS Association

27001 Agoura Road, Suite 250
Calabasas Hills, CA 91301-5104
Phone: (818) 880-9007
www.alsa.org

The ALS Association is a nonprofit, voluntary health agency in search of a cure for ALS. Through research, patient and community services, public education, and advocacy, ALSA provides help and hope to those facing the disease.

ALS Association/Project ALS

900 Broadway, Suite 901
New York, NY 10003
Phone: (800) 603-0270
www.projectals.org

Project ALS strives to bring effective treatments to patients with ALS and ultimately find a cure. Most funds raised go toward supporting research in the areas of genetics, drug discovery, stem cells, and disease pathways.

Muscular Dystrophy Association

3300 E. Sunrise Drive
Tucson, AZ 85718
Phone: (800) 344-4863
www.mda.org
For the ALS portion of the MDA Web site, visit www.als-mda.org

The Muscular Dystrophy Association is a voluntary health agency bringing scientists and the public together to fight neuromuscular diseases through research, medical and community services, and health education. The ALS portion of the MDA Web site provides links to valuable information and services such as MDA clinics, ALS research and clinical centers, support groups, equipment funding, loan program and repairs/modifications, summer camp program, MDA chat groups, and MDA services for individuals and families.

National Organization for Rare Disorders (NORD)

55 Kenosia Avenue
P.O. Box 1968
Danbury, CT 06813-1968
Phone: (203) 744-0100
(800) 999-6673 (voicemail only)
TDD: (203) 797-9590
www.rarediseases.org

NORD is a group of voluntary health organizations serving patients with rare diseases and their families through education, advocacy, research, and service programs. Their purpose is to commit to the identification, treatment, and cure of rare diseases.

NIH Neurological Institute

P.O. Box 5801
Bethesda, MD 20824
Phone: (800) 352-9424
www.ninds.nih.gov

The National Institute of Neurological Disorders and Stroke (NINDS) researches disorders of the brain and nervous system. It is one of several research institutes and centers that make up the National Institutes of Health (NIH). The NIH, located in Bethesda, Maryland, is an agency of the Public Health Service within the US Department of Health and Human Services.

Eleanor and Lou Gehrig MDA/ALS Center

The Neurologic Institute
710 West 168th Street, 9th floor
New York, NY 10032-2699
Phone: (212) 305-1319
www.columbiaals.org

The Eleanor and Lou Gehrig MDA/ALS Center at The Columbia-Presbyterian Medical Center, Neurological Institute of New York is one of the country's biggest centers for ALS comprehensive care. The center provides patient care, researches the cause and cure for ALS and other motor neuron diseases, educates healthcare professionals, and reaches out to their patients' communities. They join forces with government agencies and nonprofit agencies (NIH, MDA, and ALSA) in caring for people with ALS and finding a cure.

Robert Packard Center for ALS Research at Johns Hopkins

5801 Smith Avenue, McAuley Suite 110
Baltimore, MD 21209
Phone: (410) 614-5972
www.alscenter.org

The Robert Packard Center for ALS Research at The Johns Hopkins School of Medicine researches new therapies to slow or cure ALS.

University of Miami Kessenich MDA ALS Center

1150 NW 14th Street, Suite 701
Miami, FL 33136
Patients Only: (800) 690-ALS1 (2571)
Local Calls: (305) 243-7400
www.miami-als.org

The University of Miami ALS Clinical and Research Center provides care and multifaceted support for patients with ALS and supports the families from diagnosis to the end stages of the disease. They also conduct advanced research into the cause and cure of ALS. This Web site also contains contact information for ALS Certified Clinical Care Centers across the country.

ALS Therapy Development Institute

215 First Street
Cambridge, MA 02142
Phone: (617) 441-7200
www.als.net

The ALS Therapy Development Foundation is a nonprofit biotech company researching treatment for ALS patients.