Books

The following titles are recommended reading for ALS patients, their family members, and caregivers. Books to help plan a trip for travelers with disabilities are also included.

I Choose to Live: A Journey Through Life with ALS
William Sinton Burnbury Publishing, Gurney, IL 2002
I Remember Running: The Year I Got Everything I Ever Wanted - and ALS
Darcy Wakefield Marlowe & Company, Washington, DC 2006
If They Could Only Hear Me: A collection of personal stories about ALS and the families that have been affected
Ed Rice (editor) BookSurge Publishing, Charleston, SC 2005
Tales from the Bed: A Memoir
Jenifer Estess, Valerie Estess Washington Square Press, reprint edition 2005
Amyotrophic Lateral Sclerosis: A Comprehensive Guide to Management
Mitsumoto H and Norris F, eds. Demos Publications 386 Park Avenue South, Suite 201 New York, NY 10016
Phone: (212) 683-0072 or (800) 532-8663

Travel Books

Fodor's Great American Vacations for Travelers with Disabilities Fodors Travels Publications
How to Travel: A Guidebook for Persons with a Disability
Fred Rosen Science and Humanities Press
Wheelchair Around the World
Patrick D. Simpson Pentand Press

Important Safety Information

You should not take Rilutek if you are allergic to any of its ingredients.
Call your doctor if you have a fever while taking Rilutek.
Rilutek may cause you to feel dizzy, light-headed, or sleepy. If you experience any of these, you should NOT drive a vehicle or use machinery.
If you miss or skip a dose of Rilutek, do not take any extra tablets to make up for those you missed, but take your prescribed dose at the next regularly scheduled time.
When taking Rilutek, avoid drinking excessive amounts of alcohol; alcohol may contribute to compromising liver function and may be associated with an increased risk of liver problems.
The most common side effects of Rilutek are weakness, nausea, lung function decrease*, a mild liver disorder that is typically temporary, runny nose and headache. If any side effects become troublesome, contact your doctor.
Be sure to tell your doctor and pharmacist about all other medicines you are taking, including nonprescription products and vitamins. If you have questions, please talk to your doctor.