National Organizations

National ALS Organizations

• The ALS Association is a non-profit, voluntary health agency in search of a cure for ALS. Through research, patient and community services, public education, and advocacy, ALSA provides help and hope to those facing the disease.
  
  ALS Association
  27001 Agoura Road, Suite 150
  Calabasas Hills,CA 91301-5104
  Phone:(818) 880-9007
  www.alsa.org
  
  
• Project ALS strives to bring effective treatments to patients with ALS, and ultimately find a cure. Most funds raised go towards supporting research in the areas of genetics, drug discovery, stem cells, and disease pathways.
  ALS Association.
  
  Project ALS
  900 Broadway, Suite 901
  New York, NY 10003
  Phone: (800) 603-0270
  www.projectals.org
  
  
• The Muscular Dystrophy Association is a voluntary health agency bringing scientists and the public together to fight neuromuscular diseases through research, medical and community services, and health education. The ALS portion of the MDA website provides links to valuable information and services such as MDA Clinics, ALS Research and Clinical Centers, Support Groups, Equipment Funding, Loan Program and Repairs/Modifications, Summer Camp Program, MDA Chat Groups, and MDA services for individuals and families.
  
  Muscular Dystrophy Association
  3300 E. Sunrise Drive
  Tucson, AZ 85718
  Phone: (800) 344-4863
  www.mdausa.org
  For the ALS portion of the MDA website www.als-mda.org
  
  
• NORD is a group of voluntary health organizations, serving patients with rare diseases and their families through education, advocacy, research, and service programs. Their purpose is to commit to the identification, treatment, and cure of rare diseases.
  
  National Organization for Rare Disorders (NORD)
  55 Kenosia Avenue, PO Box 1968
  Danbury, CT 06813-1968
  Phone: (203) 744-0100 , (800) 999-6673 (voicemail only), TDD TDD Number: (203) 797-9590
  www.rarediseases.org
  
  
• The National Institute of Neurological Disorders and Stroke (NINDS) researches disorders of the brain and nervous system. It is one of several research institutes and centers that make up the National Institutes of Health (NIH). The NIH, located in Bethesda, Maryland, is an agency of the Public Health Service within the US Department of Health and Human Services.
  NIH Neurological Institute
  P.O. Box 5801
  Bethesda, MD 20824
  Phone: (800) 352-9424
  www.ninds.nih.gov
  
  
• The Eleanor and Lou Gehrig MDA/ALS Center at The Columbia-Presbyterian Medical Center Neurological Institute of New York is one of the country’s biggest centers for ALS comprehensive care. They provide patient care, research the cause and cure for ALS and other motor neuron diseases, educate health care professionals, and reach out to their patients’ communities. They join forces with government agencies and nonprofit agencies (NIH, MDA, ALSA) in caring for people with ALS and finding a cure.
  
  Eleanor and Lou Gehrig MDA/ALS Center
  The Neuologic Institute
  710 West 168th Street, 9th floor
  New York, NY 10032-3726
  Phone: (212) 305-1319
  www.columbiaals.org
  
  
• The Robert Packard Center for ALS Research at The Johns Hopkins School of Medicine researches new therapies to slow or cure ALS.
  
  Robert Packard Center for ALS Research at Johns Hopkins
  5801 Smith Avenue, McAuley Suite 110
  Baltimore, Maryland 21209
  Phone: (410) 614-5972
  www.alscenter.org
  
  
• The University of Miami ALS Clinical and Research Center provides care and multifaceted support for patients with ALS and supports the families from diagnosis to the end stages of the disease. They also conduct advanced research into the cause and cure of ALS. This website also contains contact information for ALS Certified Clinical Care Centers across the country.
  
  University of Miami Kessenich MDA ALS Center
  1150 NW 14th Street, Suite 701
  Miami, FL 33136
  Patients Only: (800) 690-ALS1 (2571), Local Calls: (305) 243-7400
  www.miami-als.org
  
  
• The ALS Therapy Development Foundation is a nonprofit biotech company researching treatment for ALS patients.
  
  ALS Therapy Development Institute
  215 First Street
  Cambridge, MA 02142
  Phone: (617) 441-7200
  www.als.net