Resources for ALS Patients and Caregivers

This section contains helpful links to contact information for national and community organizations, support groups, media, and other resources that the ALS patient and/or caregiver may wish to access over the course of the patient’s disease.

Important Safety Information

You should not take Rilutek if you are allergic to any of its ingredients.
Call your doctor if you have a fever while taking Rilutek.
Rilutek may cause you to feel dizzy, light-headed, or sleepy. If you experience any of these, you should NOT drive a vehicle or use machinery.
If you miss or skip a dose of Rilutek, do not take any extra tablets to make up for those you missed, but take your prescribed dose at the next regularly scheduled time.
When taking Rilutek, avoid drinking excessive amounts of alcohol; alcohol may contribute to compromising liver function and may be associated with an increased risk of liver problems.
The most common side effects of Rilutek are weakness, nausea, lung function decrease*, a mild liver disorder that is typically temporary, runny nose and headache. If any side effects become troublesome, contact your doctor.
Be sure to tell your doctor and pharmacist about all other medicines you are taking, including nonprescription products and vitamins. If you have questions, please talk to your doctor.